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Free
Free
Delivered Online
Virtual course for parents of adult children at risk/pre manifest.
We are pleased to invite you to our virtual course for parents of adult children at risk/pre manifest. This is an opportunity to improve your knowledge of the issues surrounding your adult child at risk, share your experiences and gain ideas of support available for yourself and your adult child. This is a 5 week course running from Thursday 22 February 2024 10am -11.30am until Thursday 21 March, with the final session being an extended session narrative therapy session facilitated by Riverbank Psychology. There will be the opportunity to join a follow up support group.
Week 1 – Thursday 22 February 2024 10am
Welcome and overview of support available from the Huntington Disease Association. Speaker: James O’Connor – Team Leader HDYES – Huntington’s Disease Association
Week 2 – Thursday 29 February 2024 10am
Genetics: How to access testing, the process and family planning options
Speaker: Chris Platt – SHDA – Huntington’s Disease Association
Week 3 – Thursday 7 March 2024 10am
Research update and what next
Speaker: Nataile Saad - Research Sister - Welcome Trust Southampton University Hospital
Week 4 – Thursday 14 March 2024 10am
Finances planning ahead
Speaker: Lisa Pearson - Financial Advisor - Asset management
Week 5 – Thursday 21 March 2024 9.30 -12.30pm (note longer session)*
Narrative Therapy: Coping with Feelings, supporting a loved one and self-care.
Mariangels Ferrer – Clinical Psychologist – Riverbank Psychology
* We will invite previous course participants to this part of the course but can only accommodate a maximum of 12/14 people on the day. The focus of Narrative Therapy in this group is to participate in a creative activity that explores identity through values, beliefs, and support systems, enabling us to make connections to our external lives which will be sustainable in our everyday lives. Mariangels Ferrer Duch is a Clinical Psychologist trained in Narrative Therapy who will be facilitating a three-hour Narrative Therapy session.
The focus of the session will be upon the many small things that are important to us in life which can often be overlooked in times of stress. We hope the conversation will help to mutually inspire us all!
We take your privacy seriously and promise to never sell your data. You can find out more about your rights, how we use your personal information and how we keep your details safe and secure by reading our privacy policy here.
For more information email info@hda.org.uk or call 0151 331 5444.