Keeping Yourself in Mind: An ACT-informed programme for people supporting a family member with JHD We are pleased to invite you to our virtual course for parents and family carers of people living with Juvenile Huntington’s disease. The course will be run by Sarah Gunn, a clinical psychologist and researcher at the University of Leicester, and will be based on the principles of Acceptance and Commitment Therapy. Acceptance and Commitment Therapy is a therapeutic approach which focuses on learning to manage difficult thoughts and feelings, and to live a life which feels valuable and meaningful despite the struggles we encounter. This is an opportunity to explore the difficulties that can be associated with caring for a person with JHD (for you and within the family), to identify the values that matter most to you, and for you to think about how to move towards a more rich and valued life than you may have now. This is an eight-week course running from Wednesday 7 February to Wednesday 27 March 2024. The sessions will be on a Wednesday afternoon 1-2.30pm. Here is a very brief session outline: Week 1: Introductions: To ACT, to the programme, and to each other Week 2: Impacts of Juvenile Huntington’s on the “carer”* and wider family Week 3: Psychological wellbeing when supporting a person with Juvenile Huntington’s Week 4: Coping and adjustment: Living with, not battling against Week 5: What matters to you: Finding your values Week 6: Moving forward: Taking steps to align with your values Week 7: Living a valued life alongside Huntington’s: Plans and coping strategies Week 8: Reflection and ending: What’s next? *Note: Some people don’t like this term, so here we’re using it in quote marks. During the course, we will discuss which term would be preferred by the people attending. For more information on what information we collect and how we use it when booking onto one of our events, please see our privacy policy on our website.
How can the Huntington's Disease Association help you? Join us to find out about the support we can offer. Finding the right help at the right time can be daunting for those affected by Huntington's disease....and we're here to help. This webinar is for anyone who would like to find out more about support available from the Huntington's Disease Association. It is open to family members, friends, health and social care staff and anyone else keen to learn about what we do. By the end of the session you will understand the work of our advisory service and youth engagement teams, our education programme, how to access information, local support and much more. For more information on what information we collect and how we use it when booking onto one of our events, please see our privacy policy on our website.
A webinar focusing on how to keep active. Do you have Huntington's disease and would like to be able to keep as active as possible? Or do you care for someone who has Huntington's disease and are interested in encouraging activity? A new resource 'Keeping Active with Huntington's Disease' has been developed with carers and has tips and hints on planning activities with lots of examples of suitable exercises. Dr Una Jones from Cardiff University will take you through how to use the resource and answer any questions on keeping active. This FREE webinar will be suitable for family members and professionals. For more information on what information we collect and how we use it when booking onto one of our events, please see our privacy policy on our website.
Study session for professionals supporting someone with Huntington's disease. This study session is aimed at professionals supporting someone with Huntington's disease either at home or in a care setting and will give a general overview of Huntington's disease. We will cover topics such as: What is Huntington's disease? What are the symptoms? What might help when supporting someone who has Huntington's disease? There will be opportunities for questions. The session will take up to an hour and a half. For more information on what information we collect and how we use it when booking onto one of our events, please see our privacy policy on our website.
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