'Young Adults at Claire House with a focus on Duchenne Muscular Dystrophy' by Dr Jessica Macwilliam & Andrew Curtis This session will look at Duchenne Muscular Dystrophy (DMD) and the key work and support offered by the Young Adults team at Claire House Children's Hospice. Dr Jessica Macwilliam, a Paediatric Palliative Care Consultant at Alder Hey Children's Hospital and Claire House. Andy Curtis, a Young Adult Coordinator (RNLD) Nurse, having worked at Claire House for over 10 years.
‘Chronic Kidney Disease and Dialysis in Palliative Care’ by Dr Lydia Baines Lydia is one of our palliative care registrars and has been with us since August last year. She lives on the Wirral and outside of work you'll often find her training for her next Hyrox race!
Are you Dotty about Data? Ever wondered how the Senior Leadership Team use clinical data? Want to know why there is so much clicking on SystmOne? Our Director of Clinical Services, Chris Sutcliffe will talk about what our data and patient related information is showing us, how we use it and where we are heading. The session will explore the how and why we collect and collate hospice data, and the key role you play in ensuring that data is valid, reliable, and credible.
Presentation on the latest on Palliative Care research and the CHELsea II Trial at Wirral Hospice St John’s by Cheryl Clements This session will cover: - Introduction to the NIHR (National Institute of Health and Care Research) and the new RRDN (Regional Research Delivery Network). - Overview of palliative care. Why we need research. - Palliative care research, and areas of interest. - About the CHELsea II Trial at Wirral St John's Hospice. - Barriers to implementing palliative care research. - NIHR Training Opportunities and Resources. - Question time
In this session James will talk about the importance of making plans for our digital lives and provide a live demo highlighting how Advance Care Plans, Funeral Wishes, Bucket Lists (What Matters Most) and Online Accounts can be created. He will also provide guidance as to how people can upload and leave goodbye messages for their loved ones (like a Victorian Memory box but in a digital format).
'Introduction to Teaching Intimacy in a Hospice Setting' by Dr Despoina-Elvira Karakitsiou a ST6 in Palliative Medicine at Belfast Health and Social Care Trust. Main aims of this presentation is to define intimacy in palliative care patients, any boundaries on broaching intimacy to them and we will discuss some techniques on how to broach intimacy and any issues.
'Interventional Pain Medicine applied to Palliative Care Patients' by Dr Andrew Jones, Consultant Anaesthetist. This presentation will cover a brief background of the Hospice movement, the mechanisms of pain in the brain and spinal cord will be discussed. The limitations of pain medication will be presented. Thus, interventional pain techniques may have value for patients whose pain is not controlled. The interventional techniques available will be shown. Dr Jones, qualified in 1982 from Barts Hospital in London and after a wide range of junior roles in different specialties he started training in Anaesthesia in Merseyside. He had always been interested in the treatment of pain and was able to pursue further training in Pain Medicine. Andy became a consultant anaesthetist in 1994 and in addition a consultant in Pain Medicine in 1996. The rest is history.