findacure
Beacon is a UK-based non-profit organisation that is building a united rare
disease community with patient groups at its heart. Our patient group trainings
help these often small and voluntary organisations to form, grow, and
professionalise. It is through our events and trainings that patient groups have
the opportunity to connect and collaborate with others across the rare disease
space. At Beacon, we believe that no one should face their rare journey alone.
