walking with giants
London
The Walking with Giants Foundation was founded by Sue and John Connerty in 2008.
In 2005, their son Alex was born with an unknown condition, however just over a
year later he was pre-diagnosed with a condition called Microcephalic Primordial
Dwarfism Type II, their son’s doctors at Alder Hey Hospital in Liverpool
explained that he was the first child to be pre-diagnosed with the condition in
the UK. At the time there was little information the doctors could give them
about Alex’s condition and many questions asked by Sue and John were left
unanswered. For their son, Alex, the condition meant that he spent a lot of time
in hospital with serious health issues. In those first years of bewilderment and
anxiety, John and Sue set on a mission to find out more information. In July
2007, Sue, John and Alex went to America on a journey of discovery that would
change their lives positively forever. They got to meet other parents and
children with the same or similar condition as Alex. Furthermore, they got to
meet the few medical experts in the world who had experience, knowledge and
understanding of Microcephalic Primordial Dwarfism Type II. Not all their
questions were answered but they received enough information to allow them to
care for Alex and move forward!
